Dear Site Reviewers,
Tell us what you like about this blog. What works, what doesn’t speak to you, etc. The tolerance levels for many new caregivers is low. ("What’s this, another piece of confusion?") It is virtually impossible to survey the targeted audience for satisfaction.
Understand the mentality:
- Nothing lasts forever. I just wish it had lasted a little longer.
Caregiving can be devastating but we can’t be afraid of it. The "information flood" will be navigated……but there are hazards to moving upstream.
Captions for the pictures might help visitors understand what they are all about but as soon as these appear someone else wonders, “Why are they here? Who are these folks?”
Most people will just glance around a site for a minute and say "Is there anything here for me? Is anything interesting?" They will either leave or stay based on that.
- Too many possibilities are distracting to a person having difficulty reaching a focal point.
Do you understand what is posted and do you agree it is noteworthy? Why are different modules used, sections varied from each other, and are they valuable to visitors?
Maybe we should combine a few of the sections, keeping the best ones and deleting others? How do we make an easier map for plotting a course?
Here is more honest feedback from two reviewers:
- “It is somewhat confusing, if that’s any help. I would propose that someone who happened upon your site would have a hard time interpreting its intent. It seems to be a bit of a collage.”
- "One concept I did not see on your website that may be of interest to you and your readers is the emerging notion of ‘Compassion Fatigue’ ****www.compassionfatigue.org***** ."
Changes are made based on feedback. The hardest thing to follow is the "KISS" rule (keep it simple stupid). The principal that “Less is More” applies, especially if you fully understand the subject matter. Caregiving requires transformation and acceptance of change.
If the written word takes too much concentration, chances are it needs to be rewritten to remove "busy-ness".
One way to look at it is this:
What if…somebody just found out they need to become a caregiver for (someone you love). Linda asked me to become her caregiver (our closest family members lived three hours away) and I thought “jeez you’re going to die because I won’t know what to do.” I learned a lot about becoming a better caregiver because I listened to her describe how to change–to meet our needs.
So what happens when some other guy doesn’t listen or isn’t so lucky or doesn’t become a better caregiver quickly enough? What if their support community isn’t as close as 3 hours away? Why must everyone begin developing resources from scratch (i.e. no head start, no booster, no confidence builders) to promote awareness? Why can’t we find better tools to handle the "small, bit-by-bit, piecemeal capacities we have for learning?" Why can’t we tap custom supplies to meet the "no-holes-barred" approach required for some situations? Is there time for us to discover our personal needs while the care receiver is waiting?
If you can imagine a guy like this, what would you say to him? "Good luck?" What if you knew about a support movement that wasn’t based on a health care company or an book peddler or a professional concerned first with their business career? What would the “patchwork of information” need to look like and what should it represent before you would knowingly send him there to begin the journey of learning to cope with his feelings?
We can’t please everyone but we may reach more people together (collectively) than the sum of our parts (individually).
None of us is qualified. Does that mean you’ll take the job?